Three hours ago I had a mini-seizure because I didn't take my medicine soon enough. Seizures have pretty much slowed the progress of my life. Because of seizure, I can't live on my own because if I had a full or mini seizure while I'm in a kitchen or next to something big and heavy, I could fall and end up cracking my skull thus killing me. I can't drive a car by myself because if I have one while behind the wheel I'm pretty much destined to die. Nor can I be allowed to drive because if I have a full seizure, I'm not allowed to drive for at least 6 months. It also effects my chances of getting a job because: 1. I can't be under the sun the whole day because of my medicine or it'll make me have a mini-seizure or effect my brain in a bad way. ; 2. Stores and other places looking to hire people usually don't want employees who have bad medical problems. I have been taking medicine that has stopped full-seizures since 2002, but I'm still having problems with mini-seizures from time to time, making it hard for me to safely be behind the wheel of a car, get a job, or live on my own. Because of my seizure problems, even though I'm 29 years old right now, I'm still having to live with my parents like I'm only 13. (So as you can imagine it doesn't make that popular when it comes to hanging out or getting me a girlfriend.) < So never underestimate or make fun of people with seizure problems. I know a lot of you don't really care to talk about this kind of stuff but I just felt like talking about it since I had one not long ago.
I feel for you, and I wish it was in my power to make it easier for you. All I can do is hope for better medical advancements, and I do every day...
Thanks for understanding and feeling for me Mister B. I really appreciate it. Does anybody else here have any similar medical problems they like to share?
I don't have any actual medical conditions, but if it counts, i have depression issues. when i am sad, i usually fall into a spiraling depression that lasts the whole day, following with thoughts of suicide and what i have done wrong. i don't end up killing myself, and the next day i am usually my happy self. but its something that really effects my life. when i was a kid, i had to be switched to a different school designed for kids with "special needs", i had gone through a 4 year phase during elementary where i would see everything around me as a dark pit of death and hell was just around the corner. always thinking up looping thoughts that would make anypony go crazy. it didn't help me any when they threw me into a confined room and barred me behind a 4 inch thick iron door.(that still boggles my mind the school had that) it was a horrible moment in my life that i am happy is over, i just wish my current depression issues end. Because of what i had gone through, i hate seeing ponies sad, so if you ever are in a bad mood, you can talk to me. i am willing to help in what ever way i can.
I miraculously have no major medical issues. My mother had almost-congenital arthritis in her entire body to a fairly limit aspect. My father had all sorts of health problems late in life. One sister is potentially schizophrenic while the other potentially bipolar. My brother is manic depressive, snapping into self infliction and crying at the drop of a hat (though, it's extremely rare). My aunt has severe anxiety disorder and cannot function for long without Xanax. The grand finale is my uncle. He suffers from multiple, crippling, pretty much cruel, neurological disorders. Much like MS (Multiple Sclerosis), he is in constant pain. He's like a reverse CIPA patient. The pain covers about 90% of his body and the cold magnifies it. He typically cannot feel heat and his been in several motor cycle accidents. While those healed, the disorder acts as if it caused permanent damage in those locations. For the 4+ years I've lived with him, he has only had three days completely devoid of pain. He takes Dilaudid, Neurontin, Tramadol, Baclofen, Xanax, Opana, Percocet, and Loratab, I believe. I've seen all sorts of terrible diseases first hand. I've never made fun of seizures and have witnessed one. Despite not being epileptic, I'm always afraid of strobe lights and flashes anyway.
^I hope all of you above will be better, and get your medical issues fixed. Sadly, medicine is one of areas I don't know much about and can't give advices, except full support. luckily I don't have any medical issues.
I don't have any medical issues, but for all of the people above me. I HOPE that all of your problems disappear in the near future. I'm sorry I can't say more then that, I lack the knowledge to offer more.
Just medication. I take Lyrica as an anti-depressant. My uncle's diseases are degenerative (he also has severe muscle spasms). While he's practically a living pharmacy, there's one potential procedure where he can have a nerve cut, to basically end up like a CIPA patient where he has no feeling. However, it could potentially result in crippling him. It's his last resort when the pain gets too much. The current plan is for him to have a morphine pack surgically implanted into him and feed directly into his spine. The morphine would take full effect instantly, but if he also ends up with an infection, so will that.
well i have some degree of halucinations, i see some ugly stuff but, you can call me stupid as much as you want, i dont take my medication i just dont trust any medicines (yes im a paranoid guy too) but now im used to seeing some stuff so i can get along with it...
I have physically tormenting OCD. Whenever something touches, for example, my right shoulder, I have to touch my left shoulder right shoulder right shoulder left shoulder right shoulder left shoulder left shoulder right shoulder then both at the same time. It's constantly there and extremely sensitive. Even when I'm sleeping, should I accidentally breathe on one of my arms, I have to do the same thing in that pattern. Even if I look too far to one side, I have to do something smiliar with my own god damn eyes. It's pretty dominant in my life It's also coupled with Tourette syndrome, which really makes life annoying. My tourettes basically causes me to tense really hard. It's not as noticable as coprolalia-like Tourette's, which involves swearing and the like, because I just tense. If anythig, it just looks like my arm or leg is shaking for a second. Thing is, it's always present and it hurts. The worst is at night when I'm trying to sleep. It hasn't flared up at night for a while, but when it does, it's hell. It's because I tense my stomach, and I can honestly feel whatever it's doing to my organs. The pain is immense, and it used to make me cry when I was younger. On a connected note, I've also got a kindey condition called a PUJ (pelviureteric junction) obstruction. It's basically a knot in my kidney that causes liquid to build up and inflate. It causes the kidney to tear and I swear to God I can't describe to you the pain. Extreme cases are comparable to child birth, and painkillers are useless while it's happening. I'm awaiting surgery, because right now I can't drink anything with caffeine or alcohol, nor large amounts of any liquid. Aside from that, I have insomnia and clinical depression, although I don't talk about that because there's no point. That's something I deal with myself and don't really feel like burdening people who can't do anything about it with. I have sleep paralysis as well, that's terrifying. Waking up and being unable to move is horrible, especially when you're in a semi-dream state and hallucinate somewhat. Can't think of anything else really, at least nothing interesting. Does being colourblind count?
it makes me sad that some people here are suffering from sickness and stuff, besides most of my relatives are hit with diseases now man, i am lucky
Sorry to hear that, dude. I don't take meds but the only problem i suffer is Speech and Language problems and LD from time to time (depending what it maybe) so from 2nd to 10th grade, I Latterly spend my how life in Special Ed. (Don't laugh, I dealt with this sorta thing in the past, don't need it here.) Don't know if this make you feel any better.
No, my OCD is based purely on touch and symmetry. Every thing I come into contact with can't upset the 'balance' of my body, it's weird and makes little sense. As for my eyesight, it's also strange. If you were to briefly see things through my eyes, you'd see nothing wrong. However, it's differebtiating between similar colours and shades that cause me grief.
I used to have a dormant symptom of asthma in my chest I have lowered it down to a smaller size now but it is still there. Ummm when I mover here to south Texas I found out that I was allergic to all the grasses down here so I had to get shots in both of my shoulders every two weeks for a while, now my immune system is built up enough so I do not need to get the shots any more. Other than that I have a slightly lazy eye in it being my right eye, which means I can kiss shooting a gun good bye because I am right handed but left eyed. Other than those things I get seasonal allergies every once and a while depends on what the weather is like.
It's always terrible to hear when something such as this happens to people. It's sad to hear that you life is being held back due to something like this. I really don't have any physical medical conditions, so I can't really relate, (I have a chance of getting some nasty psychological ones though.) but I still know it's terrible, and can easily kill you in certain situations. But, as mentioned before, medical science is always pushing forward and new ground is made every day. Perhaps the near future will bring a change for you, and I certainly hope it does.
I used to date a girl who had Epilepsy, meaning she had seizures, and her situation was very similar to the OP's. She was incapable of living alone, she couldn't risk driving a car, she couldn't drink any alcohol, and her Dad worried about her so much that if I got her home 5 minutes late he would FLIP OUT on me. None of that stuff bothered me at the time, because I understood that that's just how it was. However, she once had a "pre-seizure" when we were out one night, which basically made her unresponsive and disoriented. She didn't say anything or even move, she just sat there, and when she did talk, she didn't know where she was. Being only 17 at the time, and never having dealt with anything like this before, it scared the crap outta me. I got her to her Dads house and he took her to the hospital, where she did have a minor seizure, although she was at the hospital so they were able to monitor her. I think that was the only incident I ever dealt with, but I always worried what might happen. That and there were the long term issues of her not being able to drive, work or live alone. In the end though, I broke it off with her, for unrelated reasons. As for me, I used to suffer from medical complications which stem from an unhealthy lifestyle, that would have killed me long before my time. I changed the way I live, became somewhat of a health nut, and it's no longer an issue for me. So that's that.
Can't be worse than my eyes. I've never been able to see far (myopia/nearsightedness), but I wonder if my vision is deteriorating, though it's impossible to be sure since my ability to focus close up remains unaffected. I have glasses for the main purpose of driving and occasionally reading or watching TV from afar. I slouch a lot in my posture at the computer because bringing the monitor closer is too weird for me. Damn these pet peeves.
